Flossy continues her training

So far this week I have been fortunate enough to have the time to go to the gym and put into my training. I am doing my best to stick to the programme my lovely personal trainer gave me and have been going to some of the classes on offer at the gym. Some of the things that have been frustrating my efforts at the gym have been lack of equipment or broken equipment but I won’t let that stop me!

This week, I have indulged in Pilates and Zumba as well as my weights programme and runs. The Pilates class was amazing. It brought it home to me how tight I have become in certain parts of my body. While I could not do everything the rest of the class was doing, I took the opportunity to have a good stretch where I needed it. I’ve booked into another Pilates class this week.

I don’t need to say much about the Zumba. I defy anyone to not to smile during a Zumba class. I find I forget how hard I am working as I get into the music and am challenged by the new routines. I am no dancer and left and right are often foreign concepts to me but I’m not alone in that! It just adds to the entertainment value.

Tonight I headed out to do intervals. I started with a 10 minute warm up walk followed by 10 sets of intervals of 5 minutes high intensity followed by 2:30 minutes walking recovery and then a 10 minute cool down walk. I was surprised at how much I enjoyed this and also suspect that my pace wasn’t much slower that when I am just out for a normal run.

Having a good soundtrack helps the efforts. Again I was inspired by Beethoven and that old chestnut, the 9th Symphony. I broke into a bit of a sprint (my standards!) at the end. I felt pretty jubilant and energised because of the music, the exercise and the weather. I just need to add another couple of tracks to my compact and bijoux playlist as it was just a few tracks too short to see me to the end of my run.

Right now I am feeling accomplished and am rewarding my efforts with fresh strawberries and Greek style yoghurt, very tasty! This week, apart from the exercise, I have been trying to concentrate on increasing the amount of fruit I eat. Filling in My Fitness Pal has made me painfully and shamefully aware that I do not eat enough fruit and veg. As the adage goes, ‘You cannot out train a bad diet!’

So that’s tricks for now. If you want to sponsor me, you can visit my Just Giving Page here:

JustGiving - Sponsor me now!

I’m running the second Belfast City Half Marathon on 14th September for MPD Voice. You can read more about the charity here:

http://www.mpdvoice.org.uk

In an ideal world…and what the gym lacks…

I was sitting feeling a bit sorry for myself yesterday evening. ‘In an ideal world, I would have done my run and feel refreshed and energised by it but I feel too rough today to do anything.’ I had a bit of a conflict going on between knowing I have to train to do a half marathon but feeling a little knocked about by the side effects of Plaquenil (mild) and using that as nothing but an excuse to do nothing.

A combination of realising I have made my intentions public to run a half marathon, have committed myself to raising money for MPD Voice, the sponsorship I have already raised and the thought that sitting around was not going to make me feel any better motivated me out of the very comfy armchair to get moving. ( sponsor me here! JustGiving - Sponsor me now!)
That and the thought that I have paid for a programme to help me with my training!

I am so glad I did go. What a perfect evening for a jog beside the sea which was like a mill pond! It was raining gently but still quite mild. I didn’t need sleeves or gloves. I decided I would set myself a target of one hour but ended up staying out a bit longer. After feeling so groggy all day I was surprised at what I was able to do. I know I was very slow and I had to walk a little but it was a much more enjoyable evening that the one I had planned for myself!

As I ran along the beach I was accompanied by Beethoven’s 9th. Ok, I know it sounds a little contrived and pretentious but it was the perfect accompaniment. It’s a pity it’s not as lovely or invigorating to sing as it is to listen to! I really did feel uplifted by the whole experience. To answer the title of this little entry, here are some pictures of what you do not get at the gym!

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Holy, Plaquenil induced trippy dreams, Batman!

One week is not a long time to be taking this drug of choice prescribed by my rheumatologist for whatever Lupus symptoms I am meant to be having. I have been told by many people to give it a few months and I’ll really notice a difference. From what, I am not too sure…

So one week in, I’ve now got the gurgly stomach and rowdy gut that I was told I might experience. This seems to be pretty common but what’s with these completely spaced out dreams? Like, hiding from Hitler behind a shower curtain and another one with lots of white BMWs driving down the wrong side of the dual carriage way near me. These are only some of the sketchy details I can remember.

I’m feeling pretty groggy now but I’m still going to force myself to do some sort of exercise tonight. It might help me shake off that tired, leaden feeling, as well as shifting the barrel that is accumulating around my midriff! I have a holiday in the sun next month and a bikini I would very much like to wear! Don’t want to be taken for a beached whale!

Waxy skin

I didn’t think I had this until the rheumatologist I saw in April pointed it out to me on my hands. It was one of those things I had convinced myself I didn’t have and therefore could not have Scleroderma (or the CREST form my blood tests showed up so positively). I now recognise this and find it odd that it shows up more in the evening than during the rest of the day.

I’ve now found some of this same skin on my face. Around my lips and chin. You can’t really see it unless I pull a stupid face which I did last night while cleaning my teeth. I really don’t want to end up with a small restricted mouth. There it was. All white and waxy looking. Around my top lip and on my chin.

It’s not the worst thing that can happen, I suppose. My friends are all fretting about wrinkles and bags under their eyes. The little tubs of face cream you can buy that claim to either contain collagen or boost your body’s production of collagen make me laugh, the beauty industry’s cruel little joke, the irony of which not very many people get. I wish we could embrace aging both gracefully and healthily. I also wish people had more respect for the more experienced people who have lived a little!

Still I will do my best not to sit and dwell on this new discovery. There is too much work to do. Too many normal, mundane chores and tasks to fulfil. I take comfort in that. I also take comfort and feel empowered that I have just been to the gym and had a Personal Training session. I had Bambi legs after and a little bit of a Bridget Jones moment.

I don’t feel ill. I am learning a lesson in taking one day at a time, not stressing the small things and making the most of everything. It is a glorious day here. Once I have done all the housework I need to do, I plan to make the most of it. A walk along the beach or maybe a book in the back garden, I’m still not decided but this day is too glorious to waste.

The irony of it and some very good news

I have MCTD (Mixed Connective Tissue Disease). Basically my body thinks of itself as one big virus and makes various autoantibodies to fight off the bits of me that I would rather stayed intact and functional. That said, I’m relieved that I really am quite healthy despite this and my biggest issues are fatigue, Raynaud’s and reflux all of which I manage through medication and lifestyle changes.

All winter I have suffered the ill effects of our cold, damp climate. I have persevered with my running because I believe exercise gives me a real boost both physically and emotionally. Sometimes though, all my layers have not been enough to protect the outer extremities from Raynaud’s and at one point I was starting to wonder if I would ever feel warm again!

I’m relieved to say, yes, I have started to experience that odd sensation commonly referred to as heat quite recently. I have been removing sleeves, gloves, hats, scarves etc on my runs. I have even had my toes out and am thrilled that they stay relatively pink when exposed to the elements. Of course, I do get caught out every so often, such as the time I skipped down the refrigerated aisles in the supermarket whilst clad in a lovely summer dress and flip flops… Doh! That became quite a painful shopping trip and a learning experience for me…

So, where is the irony? The irony is that part of my diagnosis is that, as well as the Limited Scleroderma, I also have a ‘touch’ of lupus. Guess what sets the Lupus off! Yip, UV light! I’m not sure how severe a reaction I will have. I just know that last year I ended up with quite severe mouth ulcers, a mild rash on my face which sent me to the beauty counter for some expensive makeup to coverup with and migraines. Of course this was all pre-diagnosis and no one has ever confirmed if the two were connected.

I intend, however, to fully enjoy the summer weather and cover up as necessary. I have my sun hat and sunscreen at the ready and a whole summer to prepare myself for the Belfast city Half Marathon in September. I am making progress though I was totally floored this weekend and slept a lot of it! On one hand I’m mad at myself for sleeping so much, on the other I’m hoping the rest will have done me good and I’ll see the benefits when I hit the gym tomorrow!

The piece of very good news is that my CA125 levels are normal and I have been discharged from the gynae clinic! Hurrah! One less department to grace with my presence! I’m very grateful for the care and follow up I received from this department and grateful that it was all covered by the NHS!

Summer rain is warmer than winter rain

I relearnt this tonight as I headed out for an hour of jogging/walking/running. Unlike the winter where the rain spelt death for my fingers, toes, ears and anything else that was exposed to the freezing cold rain I was quite comfortable in my short sleeved t-shirt and running tights. No need for gloves, hats, neck gaiters etc. I even felt quite refreshed by the rain today. That said, I headed straight into a warm shower and dry clothes as soon as I got back from my outing!

My priority tonight was just to do some exercise for an hour. I wasn’t thinking about distances or speed, I was just thinking about moving and breaking a cycle of fatigue that I am in danger of giving in to. I had a reasonably good week last week but this week has been a bit of a challenge so far and today was particularly difficult with fatigue and nausea that threatened to write off my whole day this morning. Still, I pulled through. I’m made of sterner stuff than that!

An anxious start to the week saw me losing an entire night’s sleep on Sunday night/Monday morning as I played out every possible scenario and played Dr.Google with my blood test results and various maladies. I was getting the results of an MRI scan taken just before Easter after a CA125 blood test came back raised (again). This can be used as a marker for ovarian cancer but is not terribly accurate, plus it is raised in people with rheumatic diseases. I was relieved to hear that the news I was getting was good and there was nothing really to worry about. Once I get the rheumatological issues sorted out, I should see a reduction in the inflammation in my body.

I had more hassle chasing up different blood test results from my GP’s surgery. They were taken in April by a rheumatologist to give her a better picture of my disease activity (MCTD). I spoke to a very helpful GP. Who told me the rheumatologist has recommended I go onto Plaquenil once I have had a base eye test. Plaquenil is an anti-malarial but acts as a very mild immunosuppressant and is commonly used in rheumatic conditions. I have been told it will take a while to act but I should see an improvement once it gets into my system.

I am not a hypochondriac! This entry was meant to be all about my training for the Belfast City Marathon, not an episode of House! I feel better for the jog/walk/run, if a little more tired and achey in places. I’m glad I persevered. Running and exercise in general is great for giving me energy and making me feel quite empowered. I had a lovely moment tonight where I got into my stride and felt quite at ease and like I could have kept going for ever. Unfortunately the road got in my way and that moment was curtailed rather abruptly as I stood and waited for traffic to clear so I could continue.

My new ‘compact and bijoux playlist’ is working out well though it could do with a couple of extra tracks to keep me motivated. Something cheesy and with a bit of a disco vibe. Will keep thinking!